National document on rare diseases

Total:5

  • EURORDIS praises Iran’s national document on rare diseases 2021-03-02 16:32

    EURORDIS praises Iran’s national document on rare diseases

    TEHRAN – Yann Le Cam, the chief executive officer of the European Organization for Rare Diseases (EURORDIS), has praised Iran for preparing a national document on rare diseases, saying that it will change the lives of one million rare disease patients in the country.

  • National day for rare diseases proposed 2021-01-18 18:31

    National day for rare diseases proposed

    TEHRAN – February 26 has been proposed to be designated as the national day of rare diseases in the Iranian official calendar, ILNA news agency reported on Monday.

  • بیماری 2020-12-28 18:16

    National Document on Rare Diseases approved

    TEHRAN – The National Document on Rare Diseases has been approved with the aim of preventing the birth of infants with rare diseases, medical and therapeutic problems.

  • Some $280m spent annually on rare diseases treatment 2020-06-23 18:13

    Some $280m spent annually on rare diseases treatment

    TEHRAN – The Iranian government spends a total of 12 trillion rials (nearly $280 million at an official rate of 42,000 rials) to provide medical treatment and pharmaceutical services to the patients suffering from rare diseases, Mehdi Shadnoush, head of the Health Ministry's center for transplantation and disease management, has announced.

  • National document on rare diseases drafted 2019-03-03 14:44

    National document on rare diseases drafted

    TEHRAN – A comprehensive document on rare diseases has been drafted in a collaborative initiative between the Ministry of Health and NGOs active in this field, head of the transplantation and treatment of diseases department at the Ministry of Health has announced.