Iran following up on case brought by EB patients against U.S.

TEHRAN – Iran is pursuing the case indicting 30 U.S. officials and entities for harsh sanctions which are threatening the lives of hundreds of epidermolysis bullosa (EB) patients in the country.

UNICEF provides wound dressings for EB children in Iran

TEHRAN – The United Nations Children's Fund (UNICEF) has shipped specialized wound dressings for Iranian children suffering from Epidermolysis bullosa (EB), also known as butterfly disease, with financial support of Germany.

By Faranak Bakhtiari

EB patients, the most oppressed victims of U.S. sanctions

TEHRAN – Although food and medicine are claimed to be exempted from U.S. sanctions, financial and banking sanctions have limited the life-saving medicine trade which harshly targeted the patients suffering from Epidermolysis Bullosa (EB), a rare genetic disease that causes painful blistering of the skin.

Health Ministry denies shortage of wound dressings for EB patients

TEHRAN – While reports published on Monday claimed that U.S. sanctions hindering wound dressing import, threatened the lives of Iranian Epidermolysis Bullosa (EB) patients, an official with Health Ministry announced that there are a sufficient amount of wound dressings in the country for the current year ending on March 19, 2020.