Epidermolysis Bullosa (EB)

Total:6

  • Swedish company censured for not providing Iran with EB bandages 2022-07-13 20:00

    Swedish company censured for not providing Iran with EB bandages

    TEHRAN – Iranian Ambassador to Stokholm Ahmad Masoumifar has severely criticized a Swedish company for refraining from selling special bandages which are vital for patients suffering from epidermolysis bullosa (EB) in the country.

  • U.S. sanctions hurting Iran’s ‘butterfly kids’: UN experts 2021-10-20 17:23

    U.S. sanctions hurting Iran’s ‘butterfly kids’: UN experts

    TEHRAN – Over-compliance with United States-imposed sanctions against Iran is harming the right to health, and people with rare skin disease are among those affected, many of them children, experts appointed by the UN Human Rights Council said on Tuesday.

  • sanctions are an instance of rights violations 2021-04-27 12:26

    Iran writes to EU, says the bloc exercises double standards on human rights

    TEHRAN – In a strongly worded letter to the Council of the European Union, Iran formally protested against the blacklisting of several individuals and entities, saying it shows European double standards on human rights in Iran.

  • UNICEF provides wound dressings for EB children in Iran 2020-05-13 18:13

    UNICEF provides wound dressings for EB children in Iran

    TEHRAN – The United Nations Children's Fund (UNICEF) has shipped specialized wound dressings for Iranian children suffering from Epidermolysis bullosa (EB), also known as butterfly disease, with financial support of Germany.

  • EB patients, the most oppressed victims of U.S. sanctions 2019-12-22 21:09

    By Faranak Bakhtiari

    EB patients, the most oppressed victims of U.S. sanctions

    TEHRAN – Although food and medicine are claimed to be exempted from U.S. sanctions, financial and banking sanctions have limited the life-saving medicine trade which harshly targeted the patients suffering from Epidermolysis Bullosa (EB), a rare genetic disease that causes painful blistering of the skin.

  • Health Ministry denies shortage of wound dressings for EB patients 2019-05-29 20:56

    Health Ministry denies shortage of wound dressings for EB patients

    TEHRAN – While reports published on Monday claimed that U.S. sanctions hindering wound dressing import, threatened the lives of Iranian Epidermolysis Bullosa (EB) patients, an official with Health Ministry announced that there are a sufficient amount of wound dressings in the country for the current year ending on March 19, 2020.