Rare Diseases Document

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  • EURORDIS praises Iran’s national document on rare diseases 2021-03-02 16:32

    EURORDIS praises Iran’s national document on rare diseases

    TEHRAN – Yann Le Cam, the chief executive officer of the European Organization for Rare Diseases (EURORDIS), has praised Iran for preparing a national document on rare diseases, saying that it will change the lives of one million rare disease patients in the country.

  • Rare Diseases Document awaiting government approval 2021-02-15 17:37

    Rare Diseases Document awaiting government approval

    TEHRAN – The National Document on Rare Diseases, recently approved by the Ministry of Health, is being studied by the cabinet of ministers for final approval, Hamidreza Edraki, CEO of the Rare Diseases Foundation of Iran, has announced.