Rare Diseases Foundation of Iran

Total:6

  • EURORDIS praises Iran’s national document on rare diseases 2021-03-02 16:32

    EURORDIS praises Iran’s national document on rare diseases

    TEHRAN – Yann Le Cam, the chief executive officer of the European Organization for Rare Diseases (EURORDIS), has praised Iran for preparing a national document on rare diseases, saying that it will change the lives of one million rare disease patients in the country.

  • National day for rare diseases proposed 2021-01-18 18:31

    National day for rare diseases proposed

    TEHRAN – February 26 has been proposed to be designated as the national day of rare diseases in the Iranian official calendar, ILNA news agency reported on Monday.

  • بیماری 2020-12-28 18:16

    National Document on Rare Diseases approved

    TEHRAN – The National Document on Rare Diseases has been approved with the aim of preventing the birth of infants with rare diseases, medical and therapeutic problems.

  • Some $280m spent annually on rare diseases treatment 2020-06-23 18:13

    Some $280m spent annually on rare diseases treatment

    TEHRAN – The Iranian government spends a total of 12 trillion rials (nearly $280 million at an official rate of 42,000 rials) to provide medical treatment and pharmaceutical services to the patients suffering from rare diseases, Mehdi Shadnoush, head of the Health Ministry's center for transplantation and disease management, has announced.

  • rare disease 2019-06-09 20:58

    ‘About 300 types of rare diseases diagnosed in Iran’

    TEHRAN – A total of 300 types of rare diseases have been diagnosed in Iran, the Rare Diseases Foundation of Iran director said.

  • Iran to set up drugstore for rare disease patients 2019-05-10 20:10

    Iran to set up drugstore for rare disease patients

    TEHRAN — People suffering from rare diseases usually have problems finding their medications and it is planned to set up a drug store for them, CEO of Rare Diseases Foundation of Iran has said.