rare diseases

Total:10

  • rare disease 2019-06-09 20:58

    ‘About 300 types of rare diseases diagnosed in Iran’

    TEHRAN – A total of 300 types of rare diseases have been diagnosed in Iran, the Rare Diseases Foundation of Iran director said.

  • rare diseases 2019-05-13 20:00

    292 rare diseases identified in Iran

    TEHRAN- 292 rare diseases have been identified in Iran, among them the most common ones are dystrophy, neurofibromatosis, and Alopecia, also known as spot baldness, said the CEO of Rare Diseases Foundation of Iran.

  • Iran to set up drugstore for rare disease patients 2019-05-10 20:10

    Iran to set up drugstore for rare disease patients

    TEHRAN — People suffering from rare diseases usually have problems finding their medications and it is planned to set up a drug store for them, CEO of Rare Diseases Foundation of Iran has said.

  • National document on rare diseases to be drafted 2019-04-08 09:14

    National document on rare diseases to be drafted

    TEHRAN — At numerous requests put in by patients suffering from rare diseases Iranian Health Minister Saeed Namaki has tasked Tehran University of Medical Sciences with devising a national document on rare diseases, Fars news agency reported on Sunday.

  • National document on rare diseases drafted 2019-03-03 14:44

    National document on rare diseases drafted

    TEHRAN – A comprehensive document on rare diseases has been drafted in a collaborative initiative between the Ministry of Health and NGOs active in this field, head of the transplantation and treatment of diseases department at the Ministry of Health has announced.

  • Budget for rare diseases projected to rise by 70% 2018-12-31 21:46

    Budget for rare diseases projected to rise by 70%

    TEHRAN — The budget proposed for treatment of rare diseases will rise by 70 percent for the next fiscal year (starting on March 21), Budget and Planning Organization announced in a statement, ISNA news agency reported on Monday. 

  • Govt. should pay special attention to MPS, SMA: deputy health minister 2018-11-13 22:13

    Govt. should pay special attention to MPS, SMA: deputy health minister

    TEHRAN — Mucopolysaccharide (MPS) and spinal muscular atrophy (SMA) are special life-limiting diseases which require special attention from the government, the deputy health minister Qasem Janbabaei has said.

  • Free screening tests, healthcare services for MPS disorder 2018-10-12 20:23

    Free screening tests, healthcare services for MPS disorder

    TEHRAN —Iran’s Ministry of Health has planned on performing screening test for mucopolysaccharidoses (MPS) to provide the patients with free of charge healthcare services, ISNA reported on Friday.

  • Rare Diseases Day 2018-03-04 12:35

    Iranian celebs named ambassadors of rare diseases foundation

    TEHRAN – The Rare Diseases Foundation of Iran chose some well-known national athletes and artists as the ambassadors of rare diseases to raise public awareness about the least prevalent illnesses.

  • birth defects 2017-03-02 16:37

    30,000 children born with disabilities in Iran annually

    TEHRAN — Some 30,000 children are being born with disabilities in Iran per annum, deputy health minister, Mohammad-Hadi Ayyazi said, Nasimonline reported on Monday.